3-pillar approach from a fascial perspective:
To address fascial health, a 3-pillar approach is recommended: manual therapy, movement therapy, and integrative medical care.
Manual Therapy:
- Seek a therapist to work on densified, thickened fascia.
- Choose the type of manual therapy that suits you—deep tissue for those who tolerate intense pressure, or lighter osteopathic techniques if you prefer gentler touch.
Movement Therapy:
- Regular movement is crucial to keep the fascia gliding smoothly.
- Work with a movement therapist based on your specific needs, especially if you find movement intimidating.
Medical Team:
- A comprehensive care team will help address medications and medical workup.
- A comprehensive care team should include a counselor/psychologist, specialist physicians, primary care provider, alternative healthcare provider, etc.
Podcasts:
How EDS and HSD Impact Fascia and Pain with Tina Wang, MD. The Bendy Body Podcast. Sept 5 2024. https://www.bendybodiespodcast.com/how-eds-and-hsd-impact-fascia-and-pain-with-tina-wang-md/
Wang TJ, Stecco A. Fascial thickness and stiffness in hypermobile Ehlers-Danlos syndrome. Am J Med Genet C Semin Med Genet. 2021 Dec;187(4):446-452. doi: 10.1002/ajmg.c.31948. Epub 2021 Nov 6. PMID: 34741592. https://sedinfrance.org/wp-content/uploads/2022/03/Wang2021-Fascial-thickness-and-stiffness-in-hypermobile-Ehlers%E2%80%90Danlos-syndrome.pdf
Wang TJ, Stecco A, Schleip R, Stecco C, Pirri C. Change in gliding properties of the iliotibial tract in hypermobile Ehlers-Danlos Syndrome. J Ultrasound. 2023 Dec;26(4):809-813. doi: 10.1007/s40477-023-00775-7. Epub 2023 Feb 19. PMID: 36802027; PMCID: PMC10632250. https://pubmed.ncbi.nlm.nih.gov/36802027/
Websites:
Here are some key websites that offer valuable resources on Hypermobility Spectrum Disorders (HSD) and Ehlers-Danlos Syndrome (EDS):
- The Ehlers-Danlos Society - Provides comprehensive information on all types of EDS, including diagnostic criteria, treatment approaches, and patient support resources. Website: The Ehlers-Danlos Society
- Hypermobility Syndromes Association (HMSA) - Focuses on supporting individuals with HSD and EDS through education, advocacy, and research. Offers detailed guides on living with hypermobility, including lifestyle and exercise tips. Website: Hypermobility Syndromes Association
- NIH National Library of Medicine (Genetics Home Reference) - Provides an overview of the genetic aspects of EDS and HSD, including links to scientific literature and resources for further understanding the conditions. Website: NIH Genetics Home Reference
- Ehlers-Danlos News - A dedicated news site providing updates on research, clinical trials, and patient stories related to EDS and HSD. Website: Ehlers-Danlos News
Lectures by Dr. Wang: